REsources 

Resources You Can Use

We offer multiple opportunities for you to be well equipped for the journey ahead. Whether you’re a new parent or a looking for support as an adult living with a condition, the Margaret Hackett Family Program emphasizes the importance of advocacy and resources for pediatric and adults in need.

Latest MHFP Resources

Learn How To Discover Joy! 

Discover Joy with Creator of Mattea’s Joy, Jamie Freedlund to help you find joy in the journey, regardless of the current circumstances.

Managing: The Pain Edition

Explore the MHFP learning session resources on pain management with the Director of Health Psychology, Dr. Nancy Beckman.

Transition Services

Learn about how to prep your young adult for transition into adult health care with national resource center Got Transition®. Check out tools, resources, and Frequently Asked Questions to help guide your transition to adult-centered health care.

Catheterize for Kids

This child friendly, animated video shows steps how to catheterize using a catheterizable channel. This video can be a shared resource for caretakers to learn about voiding with a catheter.

Travel Tips & Tricks for You

Explore great tips to use when traveling this year! Whether you’re looking for hotels that can accommodate additional needs or fun things to do, learn about helpful resources for your next trip.

Not Sure Where To Begin?

Complete the form below and our team will be sure to contact you within 72 hours to connect you with resources!