Events

Margaret Hacket Family Program (MHFP)

Parents of Children with a Disability or Medical Condition

Who is that Person with Bubbles? How a Child Life Specialist can Improve the Medical Experience

March 23, 2022, 7:00pm – 8:00pm CST

Whether it is a hospital, doctor’s office, or even thinking about the next procedure, medical experiences are stressful events on a child and their family. A child life specialist can help support patients and families through play, developing coping skills, education, preparation, and emotional support. Join Child Life Specialist, Lanie Berk to learn more about how a child life specialist can support your child as well as things you can do to improve your child and families overall experience in the medical setting.

YMCA & Illinois Spina Bifida Association (ISBA)

Children Ages 7+ with Spina Bifida and other Neurological Disabilities

Camp Independence Summer 2022

Registration is open for YMCA Camp Independence in-person summer 2022. For information, registration, and the financial assistance application, click the link above.

The Illinois Spina Bifida Association is proud to support YMCA Camp Independence with statewide outreach and fundraising.

Illinois Spina Bifida Association

Adults with Spina Bifida

Monthly Jobs Chat with BT

Wed, Nov 17, 2021, 7:00 PM – Wed, Dec 21, 2022, 8:00 PM

Join this monthly zoom group led by Robert “BT” Trierweiler, LCPC, CRC – an ISBA vocational rehabilitation counselor. Group is held via zoom on the third Wednesday of each month at 7pm. Any topic related to employment can be discussed. Adults with spina bifida – Bring your questions and he will help you answer them! Bring your goals and he will help you work towards them! Call or text 773.444.0305 or email info@i-sba.org for more info or to get the zoom link for the next session.

Illinois Spina Bifida Association (ISBA)

Adults with Spina Bifida

Illinois Adult Group Virtual Chats

Mon, Jan 3, 2022, 7:00 PM – Mon, Dec 26, 2022, 8:00 PM

Zoom chat for any adults with spina bifida. Typically every Monday night except the 3rd week of the month at 7pm.

Text 773-444-0305 or email info@i-sba.org for the zoom links to join.

Examples of topics/activities: check-ins to see: how everyone’s doing, healthy things you’ve been doing, challenges are you having, etc. Also we’ve done virtual dance parties, dance classes, scavenger hunts, cooking competitions, exercise groups, holiday parties, game night, arts group, independent living chats and more. If you have an idea for a topic or activity, bring it to the group!

Margaret Hacket Family Program (MHFP)

Parents of Children with a Disability or Medical Condition

Who is that Person with Bubbles? How a Child Life Specialist can Improve the Medical Experience

March 23, 2022, 7:00pm – 8:00pm CST

Whether it is a hospital, doctor’s office, or even thinking about the next procedure, medical experiences are stressful events on a child and their family. A child life specialist can help support patients and families through play, developing coping skills, education, preparation, and emotional support. Join Child Life Specialist, Lanie Berk to learn more about how a child life specialist can support your child as well as things you can do to improve your child and families overall experience in the medical setting.

YMCA & Illinois Spina Bifida Association (ISBA)

Children Ages 7+ with Spina Bifida and other Neurological Disabilities

Camp Independence Summer 2022

Registration is open for YMCA Camp Independence in-person summer 2022. For information, registration, and the financial assistance application, click the link above.

The Illinois Spina Bifida Association is proud to support YMCA Camp Independence with statewide outreach and fundraising.

Illinois Spina Bifida Association (ISBA)

Adults with Spina Bifida

Monthly Jobs Chat with BT

Wed, Nov 17, 2021, 7:00 PM – Wed, Dec 21, 2022, 8:00 PM

Join this monthly zoom group led by Robert “BT” Trierweiler, LCPC, CRC – an ISBA vocational rehabilitation counselor. Group is held via zoom on the third Wednesday of each month at 7pm. Any topic related to employment can be discussed. Adults with spina bifida – Bring your questions and he will help you answer them! Bring your goals and he will help you work towards them! Call or text 773.444.0305 or email info@i-sba.org for more info or to get the zoom link for the next session.

Illinois Spina Bifida Association (ISBA)

Adults with Spina Bifida

Illinois Adult Group Virtual Chats

Mon, Jan 3, 2022, 7:00 PM – Mon, Dec 26, 2022, 8:00 PM

Zoom chat for any adults with spina bifida. Typically every Monday night except the 3rd week of the month at 7pm.

Text 773-444-0305 or email info@i-sba.org for the zoom links to join.

Examples of topics/activities: check-ins to see: how everyone’s doing, healthy things you’ve been doing, challenges are you having, etc. Also we’ve done virtual dance parties, dance classes, scavenger hunts, cooking competitions, exercise groups, holiday parties, game night, arts group, independent living chats and more. If you have an idea for a topic or activity, bring it to the group!