Meet our national experts
National Experts in CNS Congenital Anomalies
The MHFP Consortium consists of five pediatric neurosurgeons from various institutions around the country that focus research on Central Nervous System Anomalies such as achondroplasia, tethered cord, congenital brain tumors, skeletal dysplasias and more! Our current collaborating sites are Texas Children’s Hospital (Baylor College of Medicine), Boston Children’s Hospital (Harvard University), Cedars Sinai Medical Center, OHSU Doernbecher Children’s Hospital (OHSU), and UChicago Medicine (University of Chicago). Each consortium site focuses on research in addition to contributing data to the MHFP Database to build a CNS Anomaly Database that contains nationwide data that is accessible for research!
The primary goal of the Margaret Hackett Family Program (MHFP) Database is to gather comprehensive patient medical histories into a database to monitor and store information that may be helpful in bettering patient care. The MHFP Database uses REDCap to collect extensive information about patient symptoms, treatments, and surgical history. By collecting this information, the MHFP and its collaborating institutions will have access to data that may help better understand and improve patient treatments and surgical outcomes.
Our Consortium Members
Moise Danielpour, MD
Neurosurgeon, Cedar-Sinai Medical Center, Los Angeles, CA
Christina Sayama, MD, MPH
Neurosurgeon, Oregon Health & Science University, Portland, OR
Lissa Baird, MD
Neurosurgeon, Boston Children's Hospital, Boston, MA
David Bauer, MD, MPH
Neurosurgeon, Baylor College of Medicine, Houston, TX
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