The 5th Annual MHFP Symposium



The 5th Annual Margaret Hackett Family Program (MHFP) Symposium introduced a variety of central nervous system (CNS) congenital anomalies and the challenges of their treatments. Specific congenital syndromes will be visited in detail to describe treatment approaches. In addition, models of care as well as future approaches will be discussed.

At the conclusion of this educational activity, participants had learned how to:

  • Discuss the complexities of living with a central nervous system congenital anomaly;
  • List the various tools used to diagnose and treat specific congenital anomalies of the central nervous system;
  • Identify congenital anomalies of the central nervous system that remain difficult to treat;
  • Describe current research approaches to several common congenital anomalies of the central nervous system.


This webinar event was designed for neurosurgeons, neurologists, pediatricians, physical medicine and rehabilitation physicians, nurses, physical and occupational therapists, and other healthcare professionals dedicated to the treatment of central nervous system congenital anomalies.

A total of 90 participants attended the in-person and webinar event. A variety of facilities were represented by these participants across the country including UChicago, Texas Children’s Hospital, Cedars Sinai, Boston Children’s Hospital, NYU, Johns Hopkins and many more!


Genetic Skeletal Disorders: Natural History and Advances in Treatment

Genetic Skeletal Disorders: Natural History and Advances in Treatment

Julie Hoover-Fong, MD, PhD

Dr. Julie Hoover-Fong is a Professor of Genetic Medicine and Pediatrics and Director of the Greenberg Center for Skeletal Dysplasias at Johns Hopkins University.

Dr. Hoover-Fong holds a bachelor’s degree in Human Nutrition from The Ohio State University, where she also completed her medical degree. She received her Ph.D. in the Graduate Training Program in Clinical Investigation at the Johns Hopkins University School of Medicine and Bloomberg School of Public Health. Dr. Hoover-Fong completed a pediatric internship and residency at Washington University in St. Louis and a fellowship in medical genetics at Johns Hopkins University in Baltimore. She joined the Johns Hopkins University faculty in 2002 and progressed to Professor of Genetic Medicine and Pediatrics in 2019.

Pediatric Spine

Pediatric Spine

Richard Anderson; MD, FACS, FAAP

Rich’s research focuses primarily on the clinical outcomes of children with spinal disorders. Through leadership and participation in national and international clinical registries, his team is continuously investigating methods to study and improve the clinical care of pediatric patients with spinal disorders including scoliosis, tethered spinal cords, Chiari I malformation, cervical spine instability, basilar invagination, spinal tumors, and other neurosurgical problems.

How Computer Simulation Contributes to Hydrocephalus

How Computer Simulation Contributes to Hydrocephalus

Seif Gholampour, PhD

Dr. Seif Gholampour currently works for the Margaret Hackett Family Program in the Department of Neurological Surgery at the University of Chicago. He has more than 13 years of research experience in biomedical modeling of CNS, computational and experimental neuroscience, cerebral blood hemodynamics, CSF hydrodynamics, machine learning, brain morphology, brain biomechanics, image-based fluid-structure interaction/computational fluid dynamics/finite element analysis simulations in neuroscience, and neurosurgical drilling systems. Currently, he is working on changes in intracranial fluid dynamics and recovery behavior of brain tissue of hydrocephalus patients after shunting to improve shunt outcomes, as well as the development of machine learning models to predict the risk of shunt failure.

Post-Event Feedback

At the conclusion of this event, participants were given a post-event survey while claiming their continuing medical education (CME) credits. Around 15 participants completed the survey, and 93% plan to implement changes to practice.  The most common changes reported were patient care and medical knowledge (60% each) and 67% reported no barriers to change.