Patient & Family Events

Connect Groups

Join us the first Thursday of each month for a virtual Connect Group!  MHFP leads a monthly Connect Group to provide care, education, and resources to individuals and families impacted by CNS anomalies, so you never feel alone in your search for answers.

Socials

Each quarter MHFP members gather in-person for a social!  Quarterly socials provide a sense of community for what often feels like a solitary journey for patients and families afflicted with rare CNS conditions. They offer a fun atmosphere, often time with food and activities.

  Events

Twice per year, members gather for a formal in-person event to celebrate and meet current MHFP attendees to increase program engagement and awareness.  These events feature catered food, give-aways, fun activities and resources!

Upcoming Events

Meet Connect Group Leaders: Virtual Open House

  • Meet MHFP Connect Group Leaders virtually
  • Connect with families and individuals affected by rare conditions
  • Ask Questions and learn more about MHFP
  • Share your story!

Agenda:

Location: Virtual Via Zoom

Date: January 22nd

  • Time: 7:00pm – 8:00pm

Previous MHFP Events

Lean more about Power of Attorney vs. Guardianship with Stephanie Ridella Vittands from Center of Disability and Elderly Law.