Patient & Family Events

Connect Groups

Join us the first Thursday of each month for a virtual Connect Group!  MHFP leads a monthly Connect Group to provide care, education, and resources to individuals and families impacted by CNS anomalies, so you never feel alone in your search for answers.

Socials

Each quarter MHFP members gather in-person for a social!  Quarterly socials provide a sense of community for what often feels like a solitary journey for patients and families afflicted with rare CNS conditions. They offer a fun atmosphere, often time with food and activities.

  Events

Twice per year, members gather for a formal in-person event to celebrate and meet current MHFP attendees to increase program engagement and awareness.  These events feature catered food, give-aways, fun activities and resources!

Upcoming Events

Connect Group Webinar: Shunt Complications

Join MHFP in our Connect Group Webinar where we will explore how to cope with shunt complications.

This webinar will discuss:

  • What is a shunt?

  • Causes of shunt?

  • Treatment and Management of shunt complications

Bring your questions!

This will be an open conversation where you can express your feelings and be encouraged by others.

 

Register Here

Connect Group Webinar: Sleep Apnea

Join MHFP in our Connect Group Webinar where we will explore how to cope with sleep apnea.

 

This webinar will discuss:

  • Sleep and why it matters

  • Sleep apnea and CNS Anomalies

  • Treatment and management of sleep apnea

Bring your questions!

This will be an open conversation where you can express your feelings and be encouraged by others.

 

Register Here

MHFP Share Your Story Event

Join MHFP on April 9 at 12:00 PM to share your experience and be featured on the MHFP social media and website!!

 

Your story will include:  

  • What do you like about MHFP?

  • Share one or more positive experience.

  • How has MHFP helped you?

 

Time and Place:

  • April 9th at 12:00 PM

  • Lakefront Restaurant

Register Here