The 6th Annual MHFP Symposium

PRENATAL INSIGHTS AND SURGICAL ADVANCEMENTS IN CNS ANOMALIES

Synopsis

The 6th Annual Margaret Hackett Family Program (MHFP) Symposium introduced a variety of central nervous system congenital anomalies and the challenges of diagnosis and treatment. Specific congenital syndromes were discussed in detail to describe various approaches to each entity. In addition, models of care as well as future approaches were discussed.

At the conclusion of this educational activity, participants had learned how to:

  • Discuss the complexities of living with a central nervous system congenital anomaly;
  • List the various tools used to diagnose and treat specific congenital anomalies of the central nervous system;
  • Identify congenital anomalies of the central nervous system that remain difficult to treat;
  • Describe current research approaches to several common congenital anomalies of the central nervous system.

Participants

This webinar event was designed for neurosurgeons, neurologists, pediatricians, physical medicine and rehabilitation physicians, nurses, physical and occupational therapists, and other healthcare professionals dedicated to the treatment of central nervous system congenital anomalies.

A total of 73 participants attended, including 37 unique participants in person and 36 unique participants online. A variety of facilities were represented by these participants across the country including UChicago, Texas Children’s Hospital, Cedars Sinai, Boston Children’s Hospital, Alabama Children’s Hospital, Johns Hopkins, and local hospitals including Methodist Hospital, Mercy Hospital, Henry Ford Health System and more!

Speakers

Chiari Surgical Success: Predicting Who Will Benefit

Chiari Surgical Success: Predicting Who Will Benefit

Brandon Rocque, MD

Dr. Rocque’s primary focus is pediatric neurosurgery care for hydrocephalus, spina bifida, pediatric brain tumors, spasticity, peripheral nerve injuries, and Chiari malformation. In addition, Dr. Rocque practices general adult neurosurgery at the Birmingham VA Medical Center, with a focus on care for spinal disorders. He is certified by the American Board of Neurological Surgery, and is an active member of the AANS, CNS, the Joint Section on Pediatric Neurosurgery, and the American Society of Pediatric Neurosurgeons.

Dr. Rocque’s research focuses on improving the experience of care for children with neurosurgical conditions and their families. He received a grant from the Kaul Pediatric Research Institute for his work to improve the transition process from pediatric to adult care for individuals with spina bifida. He received a UAB CCTS KL2 award to support his research on distress and psychosocial risk among families of children with newly diagnosed brain tumors. In addition to those ongoing projects, Dr. Rocque is exploring the psychological effects of a lifetime of neurosurgical encounters for children with hydrocephalus.

Dr. Rocque was born and raised in Atlanta, GA. He attended the University of Georgia, where he was a member of the NCAA top-ten men’s swim team and graduated summa cum laude with majors in chemistry and biology. He received his medical degree from Washington University in St. Louis and went on to neurosurgery residency at the University of Wisconsin in Madison. During residency, he completed a Master’s Degree in Clinical Investigation. Dr. Rocque spent an additional year in Madison for a fellowship in Complex and Reconstructive Spinal Surgery prior to completing his training with the renowned pediatric neurosurgery fellowship at Children’s of Alabama.

The Brain in Utero: Diagnosis, Prognosis, and Intervention

The Brain in Utero: Diagnosis, Prognosis, and Intervention

Kristin Baranano; MD, PhD

Dr. Barañano earned her M.D. and Ph.D. degrees from the Johns Hopkins University School of Medicine, where she also completed residencies in pediatrics and neurology, along with a fellowship in neurogenetics at the Kennedy Krieger Institute.

Dr. Barañano is a clinical associate in the Johns Hopkins Division of Pediatric Neurology, where she specializes in the genetic bases of neurologic illnesses. She has a particular interest in understanding the genetic control of the development of the cerebral cortex and cerebellum. Her clinical interests include whole exome sequencing in child neurology, childhood-onset and inherited ataxias, malformations of cortical development, and intractable epilepsy. She is a member of the multidisciplinary Fetal Management group and is available for prenatal consultations. Dr. Barañano’s research includes collaborative efforts with the Johns Hopkins Institute of Genetic Medicine and the Division of Neurogenetics at the Kennedy Krieger Institute.

Artificial Intelligence in Congenital CNS Anomalies

Artificial Intelligence in Congenital CNS Anomalies

Seif Gholampour, PhD

Dr. Seif Gholampour currently works for the Margaret Hackett Family Program in the Department of Neurological Surgery at the University of Chicago. He has more than 13 years of research experience in biomedical modeling of CNS, computational and experimental neuroscience, cerebral blood hemodynamics, CSF hydrodynamics, machine learning, brain morphology, brain biomechanics, image-based fluid-structure interaction/computational fluid dynamics/finite element analysis simulations in neuroscience, and neurosurgical drilling systems. Currently, he is working on changes in intracranial fluid dynamics and recovery behavior of brain tissue of hydrocephalus patients after shunting to improve shunt outcomes, as well as the development of machine learning models to predict the risk of shunt failure.

Post-Event Feedback

At the conclusion of this event, participants were given a post-event survey while claiming their continuing medical education (CME) credits. 60% of survey partcipants plan to implement changes to practice.  The most common changes reported were:

  • Patient Care (e.g., apply compassionate, appropriate, and effective treatment to patients)
  • Practice-based learning and improvement (e.g., assimilate new practices and/or guidelines into performance)
  • Interpersonal and communication skills (e.g., communicate effectively with patients, families, and colleagues)