Patient & Family Events

Connect Groups

Join us the first Thursday of each month for a virtual Connect Group!  MHFP leads a monthly Connect Group to provide care, education, and resources to individuals and families impacted by CNS anomalies, so you never feel alone in your search for answers.

Socials

Each quarter MHFP members gather in-person for a social!  Quarterly socials provide a sense of community for what often feels like a solitary journey for patients and families afflicted with rare CNS conditions. They offer a fun atmosphere, often time with food and activities.

  Events

Twice per year, members gather for a formal in-person event to celebrate and meet current MHFP attendees to increase program engagement and awareness.  These events feature catered food, give-aways, fun activities and resources!

Upcoming Events

Cooking Class with LSWRA

Join MHFP on April 26th to learn to cook with experts, share a meal with MHFP members. You will also be able to connect with families with conditions such as hydrocephalus chiari etc.

Register today!

 

Connect Group Webinar: Sleep Apnea

Join MHFP in our Connect Group Webinar where we will explore how to cope with sleep apnea.

This webinar will discuss:

  • Sleep and why it matters
  • Sleep apnea and CNS Anomalies
  • Treatment and management of sleep apnea

Bring your questions!

This will be an open conversation where you can express your feelings and be encouraged by others.

MHFP Summer Party

Join MHFP Summer Party at the Brookfield Zoo on June 21st at 11:00AM CST.

There will be: 

  • Fun games and prizes!
  • Free Advocacy Resources!
  • Opportunity to connect with MHFP members!

Upcoming Community Events:

Shirley Ryan: https://www.sralab.org/lifecenter/resources/listing-summer-camps-kids

Special Recreation Cooperative Listhttps://www.specialrecreation.org/find-my-services/sra-directory.html

Previous MHFP Events:

Connect Group – Shunt Complications: