Patient & Family Events
Connect Groups
Join us the first Thursday of each month for a virtual Connect Group! MHFP leads a monthly Connect Group to provide care, education, and resources to individuals and families impacted by CNS anomalies, so you never feel alone in your search for answers.
Socials
Each quarter MHFP members gather in-person for a social! Quarterly socials provide a sense of community for what often feels like a solitary journey for patients and families afflicted with rare CNS conditions. They offer a fun atmosphere, often time with food and activities.
Events
Twice per year, members gather for a formal in-person event to celebrate and meet current MHFP attendees to increase program engagement and awareness. These events feature catered food, give-aways, fun activities and resources!
Upcoming Events
Join MHFP for the upcoming Connect Group on Thursday, September 4th featuring the Illinois Able Account:
Why use an Able Accout?
Saving in an ABLE account allows people with disabilities to keep benefits if they need them. Up to $100,000 of ABLE funds is not a countable resource for Supplemental Security Income (SSI).
ABLEnow accounts may be used to pay a variety of expenses related to maintaining the Eligible Individual’s health, independence and quality of life. Examples of Qualified Disability Expenses include, but are not limited to:
- Education
- Housing
- Transportation
- Employment training and support
- Assistive technology and related services
- Health
- Prevention and wellness
- Financial management and administrative services
- Legal fees
- Expenses for oversight and monitoring
- Funeral and burial
- Basic living expenses
- Other expenses approved by the Secretary of the U.S. Treasure
Date: Thursday, September 4th at 7:00 PM (CDT)
The October Connect Group Webinar will be feature a Stephanie Ridella Vittands from the Center for Disability on Elder Law (CEDL) on October 2nd at 7:00 PM CST. They will give a live 30 minute presentation following by a Question & Answer section.
The presentation will cover:
- What is Power of Attorney/Guardianship
- Who has Power of Attorney/Guardianship
- CEDL Services for individuals with disabilities
About Center for Disability and Elder Law (CEDL)
CDEL has a dual mission, which has remained constant since the organization was founded in 1984:
1. To provide free legal services to low-income seniors and persons with disabilities who reside in Chicago and suburban Cook County, Illinois.
2. To foster the spirit of pro bono service throughout the Chicago and Cook County legal communities.
Location: Virtual via Zoom
Date: October 2nd
Time: 7:00PM – 8:00PM CST
Upcoming Community Events:
Shirley Ryan: https://www.sralab.org/lifecenter/resources/listing-summer-camps-kids
Special Recreation Cooperative List: https://www.specialrecreation.org/find-my-services/sra-directory.html
Previous MHFP Events:
Connect Group Webinar: Chari I Malformation Overview with
Dr. Moise Danielpour
Connect Group Webinar: Shunt Complications with Judie Holleman