Patient & Family Events
Connect Groups
Join us the first Thursday of each month for a virtual Connect Group! MHFP leads a monthly Connect Group to provide care, education, and resources to individuals and families impacted by CNS anomalies, so you never feel alone in your search for answers.
Socials
Each quarter MHFP members gather in-person for a social! Quarterly socials provide a sense of community for what often feels like a solitary journey for patients and families afflicted with rare CNS conditions. They offer a fun atmosphere, often time with food and activities.
Events
Twice per year, members gather for a formal in-person event to celebrate and meet current MHFP attendees to increase program engagement and awareness. These events feature catered food, give-aways, fun activities and resources!
Upcoming Events
Cooking Class with LSWRA
Join MHFP on April 26th to learn to cook with experts, share a meal with MHFP members. You will also be able to connect with families with conditions such as hydrocephalus chiari etc.
Register today!

Connect Group Webinar: Sleep Apnea
Join MHFP in our Connect Group Webinar where we will explore how to cope with sleep apnea.
This webinar will discuss:
- Sleep and why it matters
- Sleep apnea and CNS Anomalies
- Treatment and management of sleep apnea
Bring your questions!
This will be an open conversation where you can express your feelings and be encouraged by others.

MHFP Summer Party
Join MHFP Summer Party at the Brookfield Zoo on June 21st at 11:00AM CST.
There will be:
- Fun games and prizes!
- Free Advocacy Resources!
- Opportunity to connect with MHFP members!

Upcoming Community Events:
Shirley Ryan: https://www.sralab.org/lifecenter/resources/listing-summer-camps-kids
Special Recreation Cooperative List: https://www.specialrecreation.org/find-my-services/sra-directory.html