Patient & Family Events

Connect Groups

Join us the first Thursday of each month for a virtual Connect Group! MHFP leads a monthly Connect Group to provide care, education, and resources to individuals and families impacted by CNS anomalies, so you never feel alone in your search for answers.

Socials

Each quarter MHFP members gather in-person for a social! Quarterly socials provide a sense of community for what often feels like a solitary journey for patients and families afflicted with rare CNS conditions. They offer a fun atmosphere, often time with food and activities.

Events

Twice per year, members gather for a formal in-person event to celebrate and meet current MHFP attendees to increase program engagement and awareness. These events feature catered food, give-aways, fun activities and resources!

Upcoming Events

Register for Connect Group on Thursday January 9th at 7pm (CST) via zoom.

Join us Thursday January 9th for a presentation by Amanda Johnson, DNP from UChicago Medicine to answer your questions about “Life After a Diagnosis”.

A diagnosis often prompts many questions, such as:

What are next steps after the initial diagnosis? What questions should I ask my provider?
How can I connect with others that have a similar condition?
How do I build community and strengthen my network?
What resources does the hosptial or clinic setting offer?
How can I utilize resources beyond the hospital? (Connect Groups, Financial Resoures, Job Prepartion, etc.)

If you have more questions, let us know! Email us at MHFCP@bsd.uchicago.edu

Register Here!