The Margaret hackett family program

 In CNS Anomalies

Developing Research And supporting Patient Advocacy & Education

The MHFP

The Margaret Hackett Family Program (MHFP) is committed to wholesome care and treatment and enhancing outcomes of patients with congenital central nervous system (CNS) anomalies such as Chiari, Craniosynostosis, Hydrocephalus, Spina Bifida, Syringomyelia & more!

Learn more below about the MHFP’s three pillars.

 

Resources & Advocacy

MHFP offers Educational Webinars via Zoom, In-Peron Socials & Annual Celebration Events to bring people together.  In addition, we offer advocacy services, such as state and federal social services, case coordination, IEP & 504 plans, affordable housing, sports adaptation programs & more for families with CNS anomalies!

Clinical Research

The MHFP Consortium consists of five pediatric neurosurgeons from various institutions around the country (Portland, Los Angeles, Houston, St. Louis, Boston and Chicago) that focus research on Central Nervous System Anomalies such as achondroplasia, tethered cord, congenital brain tumors, skeletal dysplasias and more!  Together the MHFP Consortium is working to build a database of CNS anomaly patients that is used for retrospective research.

 

MHFP Research Updates

Translational Research

Artificial Intelligence (AI) is profoundly transforming medical science, serving as a pivotal tool for predictive diagnosis and outcomes, particularly in the field of neurosurgical disorders. Our research employs advanced AI models, including machine learning, ensemble methods, and deep learning.  The MHFP has a full time professional translational researcher working with AI to better understand CNS anomalies.