Resource Library

The Margaret Hackett Family Program would like to equip you and your family with knowlege about CNS Anomalies and related conditons.  Knowledge is Power!  View the videos and presentations below from our trusted providers.

Not sure where to begin?  We’ll help recommend a service for you or your loved one.

If you would like a refferal or recommendation to any of these organizations, call the MHFP at 773-795-0622 or email at mhfcp@bsd.uchicago.edu

Chiari

Dr. Moise Danielpour is the Director of Pediatric Neursiences at Cedars Sinai Medical Center in Los Angeles, CA.  Dr. Danielpour also serves as one of the MHFP Clinical Research Consortium Members, where he collaborates with institutions across the nation to learn more about better outcomes and treatment options for those with CNS Anomlies.  Listem to his presetation on Chiari, including an overview of Chiari and how the condition and navigating this condition as a patient and a provider!

Hydrocephalus

Learn more about Shunt Complications from Nurse Practioner, Jude Holleman (APRN PPCNP-BC CPNP-AC CCRN).  Watch as Judie discusses possible scenarios for shunt malfunctions, signs of a shunt malfunction and more!

spina bifida

Learn more about teaching your child to Catheterize themselves!  Dr. Mohan Gundeti, Director of Pediatric Urology from the University of Chicago and his team worked to develop a teaching video, specfically for children to team them step by step how to use a Catheter!  This video takes a complex task and breaks it down in a way that children (and adults) can understand!

other related areas

Learn more about Sleep Apnea from Dr. Alejandra Lastro, Director of Sleep Medicine Fellowship Program at University of Chicago.  Dr. Lastro discusses the various symptoms and conditions that lead to Sleep Apnea and possible treatment options!